What does remission look like?
March marked one year anniversary of Sjӧgren’s being in remission – but what does that mean, exactly? For one thing, it means learning to work with my body.
All posts tagged: Sjogren’s syndrome
Out with a bang
My last hike for the summer season was a huge let down. I only ended up logging two out of a planned six miles, I had no water and I threw the biggest trail tantrum of my life.
How to survive a Sjӧgren’s flare
Well, I survived my first self-inflicted flare this summer, with the help of some adventuring bloggers. Here’s a short list of some of the places from which I draw inspiration.
Breaking up is hard to do
About six months after being told I’ll be on oxygen for-ev-errrrrrr, I’m just a few steps away from breaking up with Gus for good!
Weakness is for wussies
I guess I just thought that once my lungs started cooperating, it would be just like old times. I didn’t take into account my body needed to rebuild what little strength and endurance it used to have.
Sjӧgren’s in the summertime
I have a feeling I’m going to learn something the hard way this summer. (Because the whole eight days in the hospital and lung damage thing wasn’t enough to teach me the first time.)
My Sjogren’s Story
I’m not one to jump on bandwagon decorated with colored ribbons, or start plastering social media with awareness campaigns. Usually, I’m of the opinion that all the ribbons and campaigns and marches and walks and fundraisers do less to raise awareness of something and more to annoy me. Don’t get me wrong, I think the intentions behind these efforts are fantastic. I just get inundated with them and therefore tune them out, making the entire point of an “awareness campaign” moot. But I digress. I’m going to make an exception and pay attention to at least one of these campaigns. April is Sjogren’s awareness month.
A New Look, A New ME!
Whew. I don’t know about you, but that last blog entry got a bit to real for me. I’m not all into talking about my feelings or even really talking about myself – especially not on this blog. But I’m going to keep with this personal vein here and there on the blog, even though adventuring is waaaay more interesting than stupid autoimmune diseases. Notice anything different about this site? I’ve gone through I-don’t-know-how-many redesigns over the years, each time getting further away from my original purpose: To showcase my fine body of work when I was in college and “networking.” (I use the term “fine” loosely here. I look back on all that and cringe now, a lot like how I will reread this in another five years and do the same.) I have tried to move my blog from being about me – because, lets face it, I’m boring – and focus on adventures! Formerly called “Curious Adventurer,” I’ve now dubbed myself the “Breathless Adventurer” complete with a new banner photo and URL. I …
I am my own worst enemy
Sho-what? I said the same thing when I first heard the name. In 2014, I was diagnosed with a lung disease caused by an autoimmune disorder.
breathlessadventurer.com 