All posts filed under: Living Breathless

Posts about my odyssey with Sjӧgren’s Syndrome and Interstitial Lung Disease, including information about treatment, changes and how I live a normal life with busted lungs and oxygen.

What does remission look like?

March marked one year anniversary of Sjӧgren’s being in remission – but what does that mean, exactly? For one thing, it means learning to work with my body.


How to hike with busted lungs

Its pretty well established on this blog that I love road trips and hiking. They are just about my two favorite activities. So you’d think – as I did – that busted lungs means no more hiking, right? WRONG. I just needed some “modifications.” You know, like the bionic woman.

So what does one need to hike with busted lungs?