All posts filed under: Living Breathless

Posts about my odyssey with Sjӧgren’s Syndrome and Interstitial Lung Disease, including information about treatment, changes and how I live a normal life with busted lungs and oxygen.

What does remission look like?

March marked one year anniversary of Sjӧgren’s being in remission – but what does that mean, exactly? For one thing, it means learning to work with my body.

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Happy 2nd Anniversary!

I figured the second anniversary of my diagnosis was as good as any to get back on the blogging horse and ride a while again. So what have I been up to for the last six months? Well, kicking Gus out – for real and true this time – is just one thing.

How to hike with busted lungs

Its pretty well established on this blog that I love road trips and hiking. They are just about my two favorite activities. So you’d think – as I did – that busted lungs means no more hiking, right? WRONG. I just needed some “modifications.” You know, like the bionic woman.

So what does one need to hike with busted lungs?