What does remission look like?
March marked one year anniversary of Sjӧgren’s being in remission – but what does that mean, exactly? For one thing, it means learning to work with my body.
All posts tagged: Living Breathless
Posts about my odyssey with Sjӧgren’s Syndrome and Interstitial Lung Disease, including information about treatment, changes and how I live a normal life with busted lungs and oxygen.
Happy 2nd Anniversary!
I figured the second anniversary of my diagnosis was as good as any to get back on the blogging horse and ride a while again. So what have I been up to for the last six months? Well, kicking Gus out – for real and true this time – is just one thing.
Happy Hiking Anniversary!
It has been a year since I started hiking again. In that time, I’ve inched closer to being able to ditch Gus, my oxygen, for good — and convinced my pulmonologist that isn’t just crazy talk.
Out with a bang
My last hike for the summer season was a huge let down. I only ended up logging two out of a planned six miles, I had no water and I threw the biggest trail tantrum of my life.
How to survive a Sjӧgren’s flare
Well, I survived my first self-inflicted flare this summer, with the help of some adventuring bloggers. Here’s a short list of some of the places from which I draw inspiration.
I love a challenge
So I didn’t get the news I wanted from my doctor about how much I need to use my oxygen, but that doesn’t mean I’m ready to give up. I’m going to prove him wrong – again.
Breaking up is hard to do
About six months after being told I’ll be on oxygen for-ev-errrrrrr, I’m just a few steps away from breaking up with Gus for good!
Weakness is for wussies
I guess I just thought that once my lungs started cooperating, it would be just like old times. I didn’t take into account my body needed to rebuild what little strength and endurance it used to have.
Sjӧgren’s in the summertime
I have a feeling I’m going to learn something the hard way this summer. (Because the whole eight days in the hospital and lung damage thing wasn’t enough to teach me the first time.)
How to hike with busted lungs
Its pretty well established on this blog that I love road trips and hiking. They are just about my two favorite activities. So you’d think – as I did – that busted lungs means no more hiking, right? WRONG. I just needed some “modifications.” You know, like the bionic woman.
So what does one need to hike with busted lungs?
breathlessadventurer.com 